Member-only story
Shane Burcaw💻Writer/Blogger
Hillarious. Brilliant. Husband. Entrepreneur. 100% Authentic!
Currently, Shane's blog has around a half-million followers. The name of his blog is, 👉🏼LAUGHING AT MY NIGHTMARE.👈🏼
Shane Burcaw was born with Spinal Muscular Atrophy (SMA) and has used a wheelchair since the age of 2. 🦼 He was very driven. and determined!
The life expectancy of child patients with spinal muscular atrophy (SMA) type I is generally considered to be less than 2 years. So, Shane beat that!
The oldest person living with SMA at 64 years old. Steve Mikita is his name. Shane is only 30 years old, so they both may live for many years!
🩺 So let’s get this out of the way…What is spinal muscular atrophy?
Spinal muscular atrophy (SMA) is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle).
SMA involves the loss of nerve cells called motor neurons in the spinal cord and is classified as a motor neuron disease.
So as it turned out, Shane became a writer.⌨️
Understandably an internet addict, in 2016 he ran across a girl named Hannah Aylward, or she ran across him.
Hannah was living in Minnesota and studying sociology when one fateful night, Hannah stumbled upon a documentary that had been produced about Shane’s life. She connected with his interests and his humor, so she sent him an email to say hello.
She was cramming for an exam that night, but the next day they made contact. Thus began a friendship online, until they eventually met in person. Eventually more. 🧡 They fell in love.
After two years of long-distance, the desire to be closer became overwhelming. Shane picked up his belongings and moved to Minneapolis, where they got an apartment together while Hannah finished her senior year of college.
Hannah became Shane’s primary caregiver, giving Internet trolls great fuel. Suff…
